My first blog!!

hi everybody,
never done this before but i really thought as a father of four children that it was time to move into the blogging era.My wife tells me about all the stories of the other parents who are in similiar situations with their little angels. My little angel is lily. She is the best child that ever came into my life (dont tell the rest of my kids). Anyway,my only issue that i have is that most" super dads" on line have DS kids with no defects.....ie lungs , heart , thyroid problems, hearing problems, sleep apnea, failure to thrive. peg fed etc etc etc... please, please, please when your putting up your fabulous blogs about your amazing children (and i know they are, BUT with no defects) think twice about the families who are up all night checking stats and oxygen levels for their angels who actually dont have time or the strenght at times to type bloggs. Life with DS kids is hard . We had 3 goes at raising children till lily came along. I know how tough it is but it is nothing compared to raising a down syndrome child with major complications!! Crumlin has been a revolving door for us for the last 2 years.
We all learn to live with what life has given us but some get it harder then others. Lets enjoy our children as children and not as special gifts from god as most people say..i hate sleepless nights, i hate my children being shipped off to their nanna's every two to three weeks, i hate my wife being a zombie from her weeks in crumlin, BUT we'd never change Lily.........
The end of this epic is that i respect everyone that is in the same situation as ourselves but nobody ever tells the stories about how bad it can be ... for those of you out there that have just found out that their child is Down Syndrome well i hope and pray that your child is well, no health problems just down syndrome.a little slow but will basically develop like any other child which is every DS parents dream, if not please be reassured that we have lived through heart surgery, tube feeding, home oxygen, etc and would not change a single thing about our Lily!!!